DEBRA (Dystrophic Epidermolysis Bullosa Research Association - Asociatia Internationala de Cercetare a Epidermolizei Buloase)
Organizatie pentru ajutarea pacientilor cu EB
http://www.debra-international.org/

ORPHANET - Baza de informatii despre boli rare si medicamente dedicate
http://www.orpha.net/consor/cgi-bin/home.php?Lng=GB

Retea de asistenta a pacientilor si a familiilor pacientilor cu EB
http://www.ebinfoworld.com/

Articol despre epidermoliza buloasa, de M Peter Marinkovich
http://www.emedicine.com/DERM/topic124.htm

Forum international despre epidermoliza buloasa
http://www.internationalebforum.org

Reteaua centrelor de cercetare in EB din Germania
http://www.netzwerk-eb.de/content/index_eng.html